It was the spring of 2004 in Las Cruces, New Mexico. The prickly pears were blooming. "Class is cancelled next Thursday," announced my grad school research methods prof. "Bobby Kennedy Jr's speaking."
I didn't know anything about Bobby Kennedy Jr. The next Thursday, I sat my purple-haired self down in our campus's biggest auditorium. In his raspy voice, he told us of his long fight suing polluters of the Hudson River. He struck me as genuinely dedicated to advocating for environmental health.
In the twenty years since, mocking Bobby Kennedy Jr has turned into a national pastime. This cartoon exemplifies how he's seen in US culture.
Now, with Trump's appointment of Robert F Kennedy Jr to Secretary of Health and Human Services, people are concerned. They worry that if confirmed, he’ll ruin our nation’s public health.
I've been wanting to fact check a fact check on Robert F Kennedy Jr for a long time. However, I didn't want to pick a typical hit piece on him, which would be fun and easy. I wanted to check a serious, science-based criticism of him.
The one I selected is thanks to a suggestion from Ed Rodgers. Check out his terrific newsletter about psychology and personal growth.
Here’s the article. It's called “Fact-checking RFK Jr's views on health policy.” No names of the journalists are disclosed; the author is just "BBC Verify team”. Let's verify it for ourselves.
The first section of the BBC fact check is Vaccine Safety.
[Kennedy] has repeatedly stated widely debunked claims about vaccine harm . . . Multiple studies since, across many countries, have concluded there is no link between vaccines and autism.”
So begins BBC Verify. The only problem is that they then proceed in citing no such studies.
Why Autism?
I've never understood why the press always zeroes in on autism when covering the discourse questioning vaccine safety. Many issues other than autism have been studied, but they go ignored by media institutions.
On a related note, the end of this post discusses the important and nuanced problem with pathologizing neurodivergence.
Kennedy has written three books that mention vaccines. Most of his message does not focus on autism. If those books contain errors, this article by BBC Verify would be the perfect place to point them out. But it doesn't.
Nevertheless, since BBC Verify focuses on autism, so will I. Although they provide no links to studies on vaccines, they do link to a WHO fact sheet. And that's what we'll dive into in Part 2, the next edition of this newsletter.
Respecting Neurodivergence
I want to make clear that I believe in celebrating diversity, not turning it into a disorder. I believe in seeing people for their strengths, not our deficiencies. I think that more often than not, it's society that needs to change, not marginalized groups.
I want to sincerely thank autism awareness enthusiasts such as The Sensitive Artist (check out her phenomenal newsletter) and Pascale Larivierre, whose post What is ‘severe autism’? is well worth reading.
Meanwhile, some children's development sharply regresses. Some are later diagnosed with Autism Spectrum Disorder (ASD). Their parents lose the ability to connect deeply with them. Many of these parents leave their careers in order to care for their children full time for the rest of their lives. I imagine it would be harder to accept autism if I had a child at Level 3.
This huge population of parents needs support. And we’ve got to stop ridiculing those who attribute their child's regression to the shot preceding it.
These parents are not pathologizing Level 1 of ASD, and neither is Kennedy. But yes, essentially, he’s pathologizing Level 3. You may have a problem with that. I respect that. And I hope you'll stick with me anyway.
There’s a good chance you know more than I about neurodivergence. If this post got something wrong, please comment.
I wrote a another comment to this post:
https://open.substack.com/pub/federicosotodelalba/p/my-recollections-of-autism-in-the?r=4up0lp&utm_campaign=post&utm_medium=web&showWelcomeOnShare=false
Fantastic article, Moorea! First of all, kudos for placing much-needed importance on fact-checking. So much of our society accepts everything they hear as factual. It's dangerous to get caught in that snare, especially with so many falsehoods spreading like a virus on social media platforms. It's equally important to make sure that our research is coming from scientific or unbiased sources, which you did. I try to do my own research as well but I have to admit, I don't do enough of this.
I don't have a strong opinion on RFK Jr. one way or another because I don't feel that I’m currently informed enough to do so. I did know that he cares about the environment which I obviously support. I do lose some respect for politicians who team up with Trump but I realize that’s an unfair statement on my part. I’ve been very raw since the election and have found myself taking things personally when I shouldn't.
I couldn't agree more that autism shouldn't be treated like a disease. It's not! Neurotypical people have weakness and neurodiverse people have strengths. As humans we all have different strengths and weaknesses. Autism has a tremendous amount of stigma attached to it and it’s imperative that we discuss it as much as we can and separate the facts from fiction. We’re not broken. Much like writing with the left hand, or being attracted to the same gender, it’s the way our brains are hard-wired and it’s baked into our DNA. Our brains are simply different.
I love what you said about it being society’s views that needs to change — not the groups of people who are being marginalized. That statement is the essence of what I hope to teach people through my writing. Prejudices are destroying our nation and our democracy. That's the real epidemic.
Lastly, I want to sincerely thank you for recommending my newsletter! I appreciate it more than you may know. I appreciate you.🩷